Inauguration of the first scientific half-day of the French SUDI Registry !

From left to right: Dr Romain Provost (Nantes), Ms Sophie de Visme (Nantes), Pr Camille Aupiais (Paris), Pr Hugues Patural (Saint-Etienne), Dr David Boels (Nantes) and Dr Anne Borsa-Dorion (Nancy).

The inauguration of the first scientific half-day of the French SUDI registry took place on July 3, 2024 at the national congress of centers of reference for unexpected infant death (CRMIN) in Nancy.

For the first time, scientists and experts presented their research work based on the registry’s data and samples.

The program included a review of the literature, a round-table discussion on SUDI and the environment, and the presentation of 3 scientific projects.

The event provided an opportunity both to highlight the enormous amount of work carried out by care teams when dealing with children who have died of SUDI, and to take stock of current knowledge and ongoing projects in this field.

The experience will be repeated in 2025, the 10th anniversary of the French SUDI registry, for which the national CRMIN congress will be held in Nantes.

ISPID 2023 – International Congress on Sudden Unexpected Death in Infancy and Mortality

ISPID (International Society for the Study and Prevention of Perinatal and Infant Death) organized an international congress in Florence, Italy, from October 5 to 8, 2023.

On this occasion, numerous experts from all over the world came together to share their work on sudden unexpected infant death in infancy (SUDI), and to exchange views with families who have experienced the tragedy of losing their child.

The physiopathology of SUDI, prevention, the importance of biomarkers, genetics and many other topics were discussed by researchers, experts and family associations, reinforcing the network around this subject that spares no country.

The French SUDI registry (OMIN registry) was able to present its initial scientific research during an oral presentation on the impact of the COVID-19 pandemic on SUDI, and a poster on the award-winning “BIOMINRISK” project.

From left to right: Léa Ferrand (Project manager), Sophie de Visme (Data manager)

Bérengère JARRY (Nurse coordinator), Dr Karine LEVIEUX (Medical coordinator)

Sophie de VISME

Presentation of research on the impact of the COVID 19 pandemic on SUDI