The organization of the French SUID registry is based on a close collaboration at both national and local levels between the participating refererral centers, ANCReMIN (National Association of Reference Centers for Unexpected Infant Death), the Clinical Investigation Center for Women, Children and Adolescents of the Nantes University Hospital and the Nantes University Hospital:
- Institutional support of the SUID registry (responsible institution): Nantes University Hospital
- Coordination/steering support of the SUID registry: Clinical Investigation Center for Women, Children and Adolescents of the Nantes University Hospital and ANCReMIN
- Methodological support for epidemiological research: Clinical Investigation Center for Women, Children and Adolescents of Nantes and the EPOPé Inserm U 1153 team of the Epidemiology and Statistics Research Center of Sorbonne Paris Cité.
All the partners are represented on a steering committee responsible for the good governance of OMIN. A scientific council has also been created.
This organization is built around a consortium agreement that defines the terms of collaboration and the contribution of each partner.
The procedures with the Commission Nationale Informatique et des Libertés (CNIL) and with the Nantes group of ethics in the field of health (GNEDS) have been carried out and the authorizations obtained.
From left to right: Dr Karine levieux (Coordinatrice médical nationale), Mme Sophie de Visme (Data-manager), Mme Pauline Scherdel (épidémiologiste), Pr Christèle Gras Le Guen (coordinatrice scientifique), Mme Anne Chauviré-Drouard (reponsable du CIC-FEA), Mme Géralfine Gallot (Responsable du CRB de Nantes), Mme Mathilde Berthome (Ingénieur du CRB de Nantes), Mme Léa Ferrand (Chef de projet), Mme Mathilde Ducloyer (Médecin légiste référent)