Sudden unexpected infant death (SUID) is “the death of an infant occurring suddenly when nothing in the known history of the infant could have predicted it”. After complete investigations including the history of the facts as well as all the complementary examinations recommended by the High Authority of Health (biology, imaging…), either a cause explaining the death is found, or no cause is highlighted, we speak then of sudden infant death syndrome (SIDS).

Despite the decrease in SUID rates observed following prevention campaigns in the early 1990s, SUID continues to be the leading cause of death among infants aged 1 month to 1 year in developed countries, particularly in France.

Currently, France remains one of the countries with a high rate of SUID in Europe with 250 to 350 infant deaths per year. A 2009 study showed that 50 to 70% of SUID remain unexplained deaths; since then, no further data have been published.

Faced with this observation, the Nantes University Hospital in collaboration with the National Association of Referral Centers for Sudden Unexpected Infant Death (ANCReMIN) set up in May 2015, a French National SUID registry.
This brings together all french referral centers taking care of children who died of unexpected infant death in France. This registry covers the entire French territory, including the overseas territories.

In July 2020, a biocollection called “BioMIN” was associated with the data collection. This biocollection collects human biological samples (blood, stool, urine, cerebrospinal fluid and hair) from children who have died of SUID and for whom the parents have signed a consent form. Samples are centralized once a year at the biological resource center of the Nantes University Hospital.

Since January 2021, SUID registry has obtained a good evaluation (A for each criteria) by the Registry Evaluation Committee composed of INCA, Inserm and Santé Publique France. This recent evaluation will allow the development of national and international collaborations with research teams to advance knowledge in the field of SUID.

1986

Creation of French Referral Centers for Sudden Unexpected Infant Death (CRMIN)

The interministerial circular of March 14 created the " Referral Centers for Sudden Unexpected Infant Death “
1986
2007 - 2009

Investigation

The “Institut de veille sanitaire” (French institution) is conducting a survey to assess the epidemiology of SUID, the circumstances of death, the management of children and the diagnoses identified and to describe them in relation to the recommendations of the Haute Autorité de Santé (HAS) published in 2007.
2007 - 2009
2013

Federation of referral centers

The French Referral Centers for Sudden Unexpected Infant Death are federated within an association governed by the Law of 1901: the National Association of French Referral Centers for Sudden Unexpected Infant Death (ANCReMIN)
2013
OMIN L'observatoire national des mots inattendues du nourisson
2015

Setting up of the French National SUID registry

This brings together all french referral centers taking care of children who died of unexpected infant death in France.
2015
OMIN L'observatoire national des mots inattendues du nourisson
2020

"BioMIN" Biocollection

Implementation of the BioMIN Biocollection to associate samples with collected data
2020
2021

Favourable opinion of the Registry Evaluation Committee

The SUID registry receives a favourable opinion from the CER (Committee for the Evaluation of Registries) for a period of 5 years
2021